Caregiving Through Grief

If you are a caregiver for someone with dementia or any kind of terminal illness, chances are you have experienced some form of grief. I know I have…it’s extremely difficult…and it hurts in ways that words don’t suffice. There are two main types of grief caregivers experience: Ambiguous Grief Anticipatory Grief Let’s talk about what…

OurFTDJourney, Dementia, Frontotemporal, Frontotemporal Dementia, Death

What TO Say to Me, When My Mom Dies!

In light of my previous post (What NOT to Say to Me when My mom Dies!), I wanted to share some things I hope people would say to me. And look, let me be upfront and say, I’ve stupidly said one or two of those things. Not all of them. Some, I’d never dare say….

ourftdjourney, frontotemporal demetia, death,

What to NOT say to me, When my Mom Dies!

Let’s face it, death is a fact of life. WE WILL ALL DIE! Whether we die in utero, shortly after birth, in an accident, some kind of disease, or in our sleep at old age, we will all die. There’s just no getting around this, no matter how hard we may try. No matter how uncomfortable that…