Why The Blog
Earlier in my mothers disease, she told me she wanted to work on a project with me. I was very excited about that. I had no idea what to do.
Being that my mom is an ex educator and because she loved learning herself, I thought this blog would be a good way to go.
Mom was no doubt an activist. She loved doing what she could to help and inform people.
I told her one day I was considering something like this. I told her I would take photos and record her. She seemed excited by the idea.
From early on, I started taking photos and videos. I would post stuff to my Facebook account to show my friends what day to day life was like. And I have a pretty good chronical of her progression (which I’ll be going through and adding on the blog, as well).
The more I posted on Facebook what this is like, the more attraction my posts drew. People loved that I was willing to be public about the joys and the struggles.
As time went on people suggested that I write a book and/or blog. I told them I had considered one or the other, or both. But, I’m a private person. I wasn’t sure if I wanted to go more public than my personal page.
Well, I started doing the research on Frontotemporal Dementia, there’s not much out there. You’ll find very few blogs if any, really talk about FTD life.
I also learned that FTD is the one of the leading causes of early onset dementia, yet the least known about and discussed.
Well, being my mother’s child, I can’t sit back and watch this continue to happen. I have to share with people that indeed, this is a terrible and scary disease. But, it doesn’t have to be all bad. It doesn’t always have to be scary. There are some good, sweet and wonderful moments. And that a lot of days, the good can outweigh the bad.
I also wanted people to understand that caring for someone with dementia is also about perspective and how you view day to day life with or without dementia being a factor.
Yes, there are many days that no matter what we do…no matter how positive we are, some things are just out of our control.
Still, I believe how we deal with most of these situations is based on perspective and even our own actions.
It’s funny, I never considered myself an activist. Yet, here I am. Life is weird like that. I believe we are meant to take our trials and use them for good.
One more factor to this blog…
Caregiving can be a lonely place. I wish I had had something like this when I was getting started to help guide me along this journey. No one should ever have to feel like they are alone.
My hope is that even though I can’t be present with you in the flesh, you’ll find some comfort in my words.
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Like!! Really appreciate you sharing this blog post.Really thank you! Keep writing.
Thank you very much!
Very well said, my friend!
Thank you, Renee! 🙂